Northern Ireland Stakeholder Group Meeting - September 2024

Permanent Members Present

Caroline Wheeler

David McDonald, Chairperson joined via Zoom. Niqi Rainey

Robert Dallas joined Meeting at 12.46.

Affiliate Members Present

None (asked to absent)

ILF Scotland Representatives in Attendance

Peter Scott Harvey Tilley Linda Scott

Robert White joined at PM via Zoom Lee House

Karen Burnett via Zoom

ILF Scotland, Denholm House, Almondvale Business Park, Almondvale Way, Livingston, EH54 6GA Tel: 0300 200 2022                                          Email: enquiries@ilf.scot  Web: www.ilf.scot

ILF Scotland is a company limited by guarantee, registered in Scotland, Company Number: SC500075. Registered office: Denholm House, Almond vale Business Park, Almondvale Way, Livingston, EH54 6GA

Permanent Members Apologies

Frances McHugh Collette Jones

Affiliate Members Apologies

None (asked to absent)

List of Actions:

  1. Lee/Linda to write to all Permanent Members who have not attended sufficient Group Meetings since before Covid-19, in accordance with our Terms of Reference, to ask them to confirm that they no longer wish to remain with the Group.
  2. David to confirm with Kieran that he has formerly stepped down as Vice Chairperson.
  3. Linda/Colin to ask an adviser/expert on Universal Credit to attend an upcoming Stakeholder Meeting.
  4. David to follow up IMMNI membership.
  5. Linda to email out changes to the Terms of Reference for Permanent Members to review and agree, alongside the Group name change & Election of Chairperson and Vice Chairperson, with their respective roles and responsibilities.
  6. Lee to email out Christmas Lunch arrangements.

1.          Welcome, Introductions, Apologies & Housekeeping

David welcomed everyone to the Meeting. Lee Informed the Members of the fire exits.

2.          Minutes from Previous Meeting

The Group approved the previous Meeting’s minutes. ILF Scotland’s Communications Team will upload to the website.

Actions from previous Meeting

List of Actions:

3.          Matters Arising

Caroline raised concerns about the continuing delay in increasing the ILF hourly rate for this current financial year and its financially detrimental impact on PAs who are on Universal Credit. Caroline raised concerns also about the misalignment in periods of payment, some being four weekly and others being monthly. Caroline asked for more information on how to manage Universal Credit and these issues. Linda and Colin agreed that they would invite an adviser/expert on Universal Credit to attend an upcoming Meeting.

Niqi referred to the item discussed at the last Meeting about the Stakeholder Group qualifying as a Disabled People’s Organisation (DPO). Niqi said she believed that this might not be possible. Harvey informed the Members that they received no legal advice as yet on this matter, but it had been discussed internally. Linda stated that the Terms of Reference would need to be changed if this was to be actioned. Peter said that he liked the suggestion but the Group would have to be

constituted differently to be a DPO and ILF Scotland would have to make changes firstly before this could happen. Members agreed not to proceed with the matter and remain constituted as they are now.

Linda informed the Members that sending a Representative to the Disability Forum of the Independent Monitoring Mechanism for Northern Ireland (IMMNI) is allowed for in our Terms of Reference. Members agreed to propose that we send a Representative. David agreed to follow this up.

4.   Hourly Rate Increase

Linda informed the Members that a submission has been made to the Government in Northern Ireland regarding hourly rate increases, to ensure it is in line with the National Minimum Wage increases, and backdated payments. Colin informed the Members that the submission was currently being considered and a decision was expected to be made later this month.

David remarked that this needs to be actioned in April to allow Recipients and their Award Managers, together with any third parties involved, to comply with their legal obligations to increase PAs wages in line with the National Minimum Wage at the decreed time, usually the beginning of each financial year, namely April. Making the monies available to Recipients and their Award Managers later in the financial year and expecting backdating to be satisfactory causes considerable problems including for PAs in receipt of Universal Credit. Caroline concurred that the payment being made in April is important, for all concerned, not least to keep within the line of the law.

Peter agreed to highlight the Universal Credit issue to Colin when considering the paper for wage increases and payments.

5.  Policy Update

Linda informed the Members that there was not much to update on currently, except that, in Scotland, following the re-opening of the Fund there, a policy change to the maximum award has been made. The maximum award for the re-opened fund is £330 per week.

Linda added that the main focus has been on the re-opening of the Fund in Scotland and ensuring that applications are being completed as promptly and properly as possible.

6.   Re-Opening of 2015 Fund Review

Colin Informed the Members that he is currently working with his team to submit the case for re-opening the Fund to the new Minister, Mike Nesbitt, MLA, adding that that submission is due in for consideration this month. David asked had Deena received any reply from the Minister to her second letter to him, which included reference to reopening the Fund. Colin agreed to check if there had been any reply.

7.   Terms of Reference

The Members discussed their concerns about the increasingly small number of Members and its impact on having enough of a quorum to make decisions. Linda confirmed that the Group’s Terms of Reference require 5 Permanent Members to be present for a quorum and any decisions to be agreed. Peter informed the Members that the ILF Board Quorum is currently 3. The Members discussed and agreed changing the number for a quorum to 3 also, in order to move ahead effectively.

Linda suggested she send out revised Terms of Reference, with the suggested changes, to enable all Permanent Members, including those not present today, to agree this change by email. The Members present agreed this.

8.   Name of Group

Linda Informed the Members that the Advisory Group in Scotland had originally been called the Recipient Advisory Group but had changed this to the ILF Scotland Advisory Group to make it clear that they were not providing advice to recipients. David had suggested NI Advisory Group. Niqi raised a couple of concerns, one being that if someone joining the Group would be committed to giving advice, the other being that the name of the Group could have an impact on attracting members. David expressed concerns that stakeholders implies more than Recipients and Award Managers and was too broad a term for who we are. David added

that the only people we are advising as an Advisory Group are ILF Scotland and relevant local Government Representatives. David concluded by pointing out that the Advisory Group in Scotland were not experiencing difficulties by using the name and that, indeed, their Membership had increased.

Robert joined the Meeting.

The Members agreed to change the name to ILF Northern Ireland (NI) Advisory Group.

Linda agreed to send out this change along with the Terms of Reference suggested changes.

9.   Membership Matters

The Members agreed this had been covered in a previous agenda point.

10.   Centre for Independent Living NI Proposal

Peter Informed the Members that Deena Nimick had been appointed as Campaigns and Policy Manager for the Centre for Independent Living Northern Ireland (CILNI). David added that it’s Chief Executive Officer, Bryan Myles, who had been an Affiliate Member until recently, had written to the Group asking that consideration be give to Deena taking his place. The Members thanked Bryan and Deena both and wished their thanks recorded but agreed that our Terms of Reference did not allow Deena’s Membership any more than it did Bryan’s, as a representative of an organisation rather than an individual in their own right. David suggested that we consider alternative opportunities to avail of Deena’s and Bryan’s experience, expertise and enthusiasm, which would form part of the Members’ later discussions.

11.   Election of Chairperson and Vice Chairperson.

Peter suggested that within other communications to the Group, the description of the roles and responsibilities, as detailed in the Terms of Reference, be included so that Members can review them if considering putting themselves forward for the posts. The Members agreed.

Peter, Harvey and Colin left the Meeting.

12.   Christmas Lunch Arrangements

Lee agreed to email out Christmas Lunch details in coming weeks.

13.   Disabled People’s Parliament

David Informed the Members about the re-establishment of the Disabled People’s Parliament and asked might they be interested in attending?

The Members agreed their interest in doing so and to attend as either individuals or Members of the Group. David agreed to keep them informed of developments and the next meetings of the Parliament.

13.   Re-Opening Of 2015 Fund Again

David raised concerns about the length of time it has taken to try to persuade will Department of Health here to reopen the Fund in NI, the more so since Scotland has reopened Its Fund nearly 9 months ago. David reckoned it will soon be time to escalate matters and wished to suggest the following staged approach:

invite the new Minister of Health, Mike Nesbitt, MLA, to meet us, to encourage him to reopen the Fund in NI;

identify potential Recipients to join us in the meeting; re-establish the Working Group;

organise an event at the Assembly to spotlight the life-giving properties of the Independent Living Fund and our quest to reopen it for others like us, inviting the new Minister of Health and other MLAs to join us at it;

present our quest to the Health Committee and ask for their support;

invite MLAs to ask questions of the Minister of Health about reopening.

David Informed the Members that he has invited an MLA to sponsor the event and reserve the Senate Chamber, at Parliament Buildings, Stormont for a 2-hour duration on a Monday or Tuesday in December.

David added that we should invite Jim Elder-Woodward and the Scotland Advisory Group to the event.

Niqi suggested a new Recipient of the re-opened Fund in Scotland make a video or come to the event in person to exhort the impact of now having the funding.

Linda recommended that re-establishing the Working Group be discussed with Colin.

The Members agreed to proceed with all the above in turn as warranted.

14.   Promoting PAs

The Members discussed the role that is required of PAs. Caroline stated we need to recognise them as Personal Care Assistants and the difference between a Carer and PA. David recommended that initially the value of the work of PAs paid with Independent Living Funding be the focus. Emma agreed to explore this.

Linda informed the Members that in terms of promoting PAs, ILF Scotland have completed a case study on Joan Turner who is a member of the Scotland Advisory Group. Chloe McKee who is also a member of the Scotland Advisory Group is writing a blog with her PA. Caroline stated she would be happy to take some of this work forward in NI via online discussions. The Members agreed this should be discussed in more detail at the next Joint Stakeholder Meeting which is taking place in Mid-October.

David left the Meeting.

15.   Any Other Business

The Members agreed to keep the re-opening of the Fund in NI high on the agenda with an updated submission with the latest figures. Linda agreed to ask Peter and Harvey to follow up.

16.   Next Meeting Arrangements

Next Meeting is Tuesday 10 December with

202402 - Northern Ireland Advisory Group Minutes - February 2024 (Easy Read)

Independent Living Fund Scotland

Northern Ireland Stakeholder Group Meeting Minutes

29 February 2024

Easy Read

a pink rectangle with the disability equality Scotland logo in white, inside it - a white outline of a speech bubble with an equals sign inside it next to the words easy read made by Disability Equality Scotland. It is next to a blue rectangle with a white tick on it with the words made with photosymbols on it.

Who was at this meeting?

The meeting happened on 29 February from 11am to 3pm.

The meeting happened in 2 ways:

  • on Zoom
  • at the Mount Conference Centre in Belfast

Permanent Members

David McDonald, Chair
Robert Dallas
Niqi Rainey
Frances McHugh (on Zoom)
Caroline Wheeler (on Zoom)

Affiliate Members

Amanda Paul
Bryan Myles

From ILF Scotland

Lee House
Harvey Tilley
Ross Browning

Who could not come to the meeting?

Kieran McCarthy, Vice Chairperson

List of Actions

Envelope with email written on it on a screen of a laptop
  • Lee to send out Policy 28 to all group members
  • David to check on and forward the link to the UK Government / UN Committee Session to Robert and other Members
Envelope with email written on it on a screen of a laptop
  • David to send out his letter to Minister Swann and the Minister's Response

All these actions have been done.

1. Welcome

David welcomed everyone to the meeting.

Lee said where the fire exits are.

2. Minutes of previous meeting

Everyone agreed the Minutes from the last meeting were fine.

The minutes will be put on the ILF website.

A man in a suit jacket holds a clipboard and red pen. His list shows the first two items are marked with a red cross.

Actions from the last meeting:

There were no actions from the last meeting.

3. Matters arising - what do we need to talk about

David said that Disabled People’s Organisations were going to Geneva, Switzerland for the UK Government session with the UN Committee on the Rights of Persons with Disabilities on 18 March 2024.

The Northern Ireland representatives are:

  • Michael Lorimer who met with us at our last meeting
  • Tony O’Reilly, who was a speaker at our joint Gathering in Stormont in 2019
  • 2 other disabled people who are wheelchair users

Robert asked whether it would be available to watch online or on TV.

David will check and let Robert and the group know.

A meeting with 4 people at a table and 2 people on screens. A red arrow points from them to the right.

David asked that Items 7, 11, 13 and 14 be carried forward to our next meeting to allow enough time to discuss them.

All Members agreed to this.

4. Election of Chairperson and Vice Chairperson

This will happen at the next meeting.

5. Re-Opening of the 2015 Fund in Northern Ireland

Harvey talked about the work being done to make sure the Fund reopens in April 2024.

A screen / ipad with a laughing lady holding an ipad on it with a yellow background. Other faces are along the top of the screen.

6 co-production events have taken place in person and online.

A Report with lines underneath. It's ring bound on the left.

Information from these events will be in a report for the Minister.

There is now a Government in Northern Ireland.

When the budget is complete, a submission will go to the Minister from the Sponsor Team to re-open the Fund in Northern Ireland, hopefully in the next 4 to 6 weeks.

A group of people sitting meeting round a table.

If approved, we would then have co-production events across Northern Ireland in the same way as Scotland.

A man in a suit and blue tie sitting at a desk signing a document.

David has sent a letter to the Minister inviting him to speak at the Joint Stakeholder Event in Edinburgh at the end of March.

David will tell the group when he gets a reply.

Some people are worried that the budget would only be enough for one year of reopening.

A woman carries a clipboard. She wears red. A man in a suit looks through a small magnifying glass.

Harvey said that Colin Dunlop discussed this with him and does not think this will affect the reopening of the Fund.

Budgets would be reviewed every year.

6. Joint Stakeholder Event update

A lady in a green t-shirt and green shoes gives a thumbs up. She stands beside a list with 5 green ticks on it.

Harvey said a lot of work has happened:

  • the agenda has been agreed
  • accommodation has been arranged for guests
  • arrangements have been made about travel and food requirements
  • presentations are complete
  • we are waiting for some final notes from both Ministers
A table of people. In front is a list with the numbers 1 to 5 and squiggles after each number.

Harvey said the event is not a reopening launch but it is about celebrating a life with purpose.

Harvey talked about the agenda and discussed the event at Holyrood.

7. Review visits

Man looks at his watch. Big red tick in front of him and a stopwatch behind him.

Harvey said the review visits have been slightly delayed across Scotland and Northern Ireland.

The Assessor team are working to deal with this.

A man in a black suit is holding a clipboard and a red pen. on the clipboard is a list. The first two boxes have red crosses (x marks) on them.

At review visits, people say that recruiting personal assistants, and the cost of living are still making things difficult.

Four people wearing lanyards. These people are professional staff members.

Harvey said ILF Scotland have taken on new staff.

8. Policy Update suspensions

A laptop with click and a hand icon on the screen

Harvey said Policy 38 has been signed off by the Scottish and the NI Government and is on the ILF Scotland website.

A pile of money and a person's hand pressing the buttons on a calculator.

Harvey talked about payment for managing awards.
ILF Scotland cannot do this on their own.

The Government have said this would cost too much.

Caroline asked if we can be paid for attending meetings.

Harvey said that ILF can cover all reasonable costs including travel, food and additional caring costs but cannot pay for attendance at a meeting.

The Government would not support this.

A man in a suit holds a list on a clipboard in front of him and a green pen. He's ticked the first 2 items.

ILF Scotland will keep looking at how to do this and will report back when any progress is made.

9. Charter for Involvement

A meeting with 4 people at a table and 2 people on screens. A red arrow points from them to the right.

This will happen at the next meeting.

10. Any Other Business

Three people behind a desk with speech bubbles above their heads. The middle bubble reads 'Any Other Business?

No one had anything to add.

14. Next Meeting

The next meeting will be on Tuesday 28 May 2024.

Copyright images © Photosymbols.

Prepared by Disability Equality Scotland

a pink rectangle with the disability equality Scotland logo in white, inside it - a white outline of a speech bubble with an equals sign inside it next to the words easy read made by Disability Equality Scotland. It is next to a blue rectangle with a white tick on it with the words made with photosymbols on it.

202312 - Northern Ireland Advisory Group Minutes - December 2023 (Easy Read)

Independent Living Fund Scotland

Northern Ireland Stakeholder Group Meeting Minutes

19 December 2023

Easy Read

a pink rectangle with the disability equality Scotland logo in white, inside it - a white outline of a speech bubble with an equals sign inside it next to the words easy read made by Disability Equality Scotland. It is next to a blue rectangle with a white tick on it with the words made with photosymbols on it.

Who was at this meeting?

The meeting happened on Tuesday 5 December from 11.30am to 3pm.

The meeting happened in 2 ways:

  • on Zoom
  • at the Mount Conference Centre in Belfast

Permanent Members

David McDonald, Chair
Niqi Rainey
Frances McHugh (on Zoom)
Robert Dallas
Collette Jones
Caroline Wheeler
Kieran McCarthy (on Zoom, left meeting at 12:25)

Affiliate Members

Amanda Paul (left meeting at 13:30)
Bryan Myles

From ILF Scotland

Linda Scott
Lee House
Peter Scott
Harvey Tilley
Robert White

Who could not come to the meeting?

Michaela Hollywood

List of Actions

A laptop with an email envelope on the screen alongside a pile of cash and a hand pressing a calculator.
  • Linda to share with Bryan the AI / Uplift records of the accounts that Lothian Council for Inclusive Living manage

An uplift is an increase in the level of pay.

A pile of money and a person's hand pressing the buttons on a calculator.
  • Linda will email the group with the main ways that money could be saved when the fund is re-opened
  • Lee will email:

- details of training of PAs to the Stakeholder Group

Envelope with email written on it on a screen of a laptop

Insurance could be invalid if PAs are not trained properly.

A lady has her hands up to her face in a thinking pose. She has a thought bubble showing nurses and doctors inside it.

- the link from the ILF Scotland website on Advanced Care Planning to the Group

Advance care planning means making decisions about the care you would want to get if you could not speak for yourself in the future.

  • assessors from Northern Ireland will find recipients to be interviewed by Finbarr as part of the social return on investment evaluation work

A recipient is someone who gets ILF money.

1. Welcome

David welcomed everyone and checked everyone was okay with the meeting sound being recorded.

2. Minutes of previous meeting

A bundle of papers with minutes written on it and a thumbs up hand. There's a laptop computer below with the word click and a hand icon on it.

Everyone agreed the Minutes from February 2022 were fine.

The Minutes will be put on the ILF website.

A pile of money and a calculator with a hand pressing the buttons. A red up arrow is on the right.

Actions from the last meeting:

  • Colin and Linda will talk about increasing the rate of PA pay by 12 per cent before April 2023 and backdating the increase to 1 April 2022

This action has happened.

  • Lee will share weblinks from Michaela to the communication team on PA support and training

3. Matters arising - what do we need to talk about

There were no new things we needed to talk about.

4. Re-opening of the 2015 Fund in Northern Ireland

A man in a suit sits at a desk looking at his laptop.

Harvey said that because there is no Northern Ireland Assembly in place, they do not know if the fund can re-open.

Colin will work on a new proposal to be sent to the Permanent Secretary in April 2024.

A nurse stands beside an older lady in a wheelchair being pushed by a younger man. They all stand in front of a building with a sign half seen showing it's an NHS hospital.

David suggested that people leaving hospital and returning home should be part of the new proposal.

Harvey agreed that this will be included.

Three people looking at a graph on a table.

Niqi suggested that it would be a good idea to include information comparing ILF Scotland recipients to non ILF Scotland recipients for how many people had to have a hospital stay, particularly for Covid.

A recipient is someone who gets ILF money.

A man outside a hospital. He has a bag as is holding a sign that says hospital passport and the traffic light symbols.

Linda said we could give the number of recipients who have advised ILF Scotland of hospital stays but was not sure if they will be able to mention Covid or not.

ILF Scotland will look more at this.

5. ILF Available Income reduction

A lady in a grey top has a speech bubble coming from her that reads thank you.

Linda confirmed that all uplifts have happened to the new maximum of 43 pounds a week or less.

David thanked Peter, Harvey, Linda and everyone else at ILF Scotland and Mark and Colin at the Department of Health who have worked hard on this.

6. PA increases in wages

A pile of money and a calculator with a hand pressing the buttons. A red up arrow is on the right.

Linda asked the group if they agreed with the way to uplift PA rates by 12 per cent, as agreed between the Department of Health and ILF Scotland.

Any recipient who pays their PA 14 pounds and 75 pence an hour keeps this rate.

Any recipient’s PA who is paid below the national minimum wage will be increased to 9 pounds 50 pence an hour.

April and 2023 calendar icons.

These increases will happen for most recipients by the beginning of April 2023.

The increases may take a bit longer if a recipient is having a review visit or their money has been suspended.

Three people in white t-shirts with their thumbs up

The Group accepted the proposals and thanked everyone involved at ILF Scotland and the NI Department of Health.

It will make a big difference to hiring and keeping PAs and to all our lives.

April 6 calendar icon with a pile of cash and a hand pressing a calculator. A red arrow pointing up is on the right.

Members asked that future increases happen in time for recipients and Award Managers to increase PA wages on 6 April.

Peter will talk to the Government about this as soon as possible.

7. Review visits

4 people sitting at a table in what looks like an interview. Underneath is a person with a bag, coat and clipboard. She's writing something on it.

Robert said that ILF Scotland are behind on review visits because:

  • it is complicated to hire and keep PAs
  • assessors are finding it difficult to have social workers at review visits
A black lady in a suit and glasses points at a check list sign that reads numbers 1 2 3.

Urgent reviews will always happen first.

Robert will keep giving the Group information about this.

8. Stakeholder / Advisory Group meeting

Harvey said we must send a proposal to the Scottish Government before ILF Scotland can plan a joint event.

David will invite the Permanent Secretary of the NI Department of Health.

A working group will start in April or May with members from Scotland and Northern Ireland to plan the event for September or October.

9. Advanced Care Planning

The ILF logo on the screen of a laptop.

Linda said that ILF Scotland has added information about advanced care planning to its website.

10. PA training programme

A meeting with 4 people at a table and 2 people on screens. A red arrow points from them to the right.

David asked that we talk about this at the next meeting so Michaela can be there.

11. Supporting Award Managers / Third Party payroll

Young lady in green holds up a clipboard. She gives a thumbs up. A big green check tick mark is on the clipboard.

Peter said the Department of Health are looking at this and Colin will then give an update to the Stakeholder Group.

12. Charter for Involvement and ILF Scotland meetings

A lady in red smiling and giving a thumbs up. She is holding a sign that says what do you think. There are three smiley faces with yes no and not sure beside them.

Emma will arrange a working group to decide what work is the most important.

Linda said that ILF Scotland are looking at what recipients said in feedback surveys and this will be linked into the Charter.

A Plan booklet followed by the April Calendar and 2023 icons.

Linda said that working groups will be arranged to start in the first 3 months of 2024. ILF Scotland will publish an updated action plan in April 2024.

13. Any Other Business

Three people behind a desk with speech bubbles above their heads. The middle bubble reads 'Any Other Business?

No one had anything to add.

14. Next Meeting

Lee will check potential dates with The Mount and will send out ‘save the dates’ emails to Group members.

Copyright images © Photosymbols.

Prepared by Disability Equality Scotland

a pink rectangle with the disability equality Scotland logo in white, inside it - a white outline of a speech bubble with an equals sign inside it next to the words easy read made by Disability Equality Scotland. It is next to a blue rectangle with a white tick on it with the words made with photosymbols on it.

202309 - Northern Ireland Advisory Group Minutes - September 2023 (Easy Read)

Independent Living Fund Scotland

Northern Ireland Stakeholder Group Meeting Minutes

19 September 2023

Easy Read

a pink rectangle with the disability equality Scotland logo in white, inside it - a white outline of a speech bubble with an equals sign inside it next to the words easy read made by Disability Equality Scotland. It is next to a blue rectangle with a white tick on it with the words made with photosymbols on it.

Who was at this meeting?

The meeting happened on 19 September from 11.30am to 3pm.

The meeting happened in 2 ways:

  • on Zoom
  • at the Mount Conference Centre in Belfast

Permanent Members

David McDonald, Chair
Caroline Wheeler
Niqi Rainey
Robert Dallas
Frances McHugh (on Zoom)

Affiliate Members

Amanda Paul
Bryan Myles

From ILF Scotland

Elizabeth McGarrity
Harvey Tilley (on Zoom)
Lee House
Linda Scott
Peter Scott (on Zoom)
Robert White
Sandra Sweeney

Department of Health Representatives in Attendance

Colin Dunlop

Other Attendees

Danny Donnelly (MLA)
Finbarr Fitzpatrick (Bis improvement)
Jack Armstrong (Policy & Research Officer for Danny Donnelly)
Mervyn Bothwell (NISCC)

Who could not come to the meeting?

Collette Jones
Kieran McCarthy (Vice Chairperson)
Michaela Hollywood

List of Actions

  • Lee will use a new way to arrange future meetings and not use doodle polls
  • Lee to re-send links from Michaela to Stakeholder Group about PA support and the future landing programme
Envelope with email written on it on a screen of a laptop
  • Lee to send the presentation out on PA support and training from Mervyn Bothwell (Complete)

These 3 actions have happened.

  • assessors from Northern Ireland will find recipients to be interviewed by Finbarr as part of the social return on investment evaluation work

A recipient is someone who gets ILF money.

Three people in white t-shirts with their thumbs up

A social return on investment looks at the benefits of a project that are not just about money.

For example it could support people’s wellbeing, or help to reduce inequality.

1. Welcome, introductions, apologies and housekeeping

David welcomed everyone to the meeting and said when guests would be taking part in the meeting.

Lee explained where the fire exits are.

2. Minutes of previous meeting

A bundle of papers with minutes written on it and a thumbs up hand. There's a laptop computer below with the word click and a hand icon on it.

David asked that the minutes have more detail about who is giving information and speaking at the meeting.

The minutes of the last meeting were approved and the ILF Communications Team will put them on the website.

A pile of money and a calculator with a hand pressing the buttons. A red up arrow is on the right.

Actions from the last meeting:

  • Colin and Linda to talk about putting the PA rate up by 12 per cent before April 2023 and backdating it to 1 April 2022.
  • Lee to share links from Michaela to the communication team on PA support and future landing programme.

Both these actions have been done.

3. Matters arising - what do we need to talk about

A table of people. In front is a list with the numbers 1 to 5 and squiggles after each number.

Niqi asked if the Charter for Involvement meetings were going ahead.

Linda said this is on the agenda for the meeting.

4. Re-opening of the 2015 Fund in Northern Ireland

David is pleased that the Fund in Scotland will re-open in April 2024.

Colin said there is still no Minister and no Executive in the Northern Ireland Department of Health.

Colin has spoken with Jack Blaik and will finish information for the Department of Health about:

  • the work being done by the Scottish Government to have the Fund re-opened
  • there is likely to be pressure to re-open in Northern Ireland

Caroline said that disabled people in Northern Ireland would not get the same amount of funding as Scotland.

Robert and Niqi supported this statement and agreed with David’s suggestion of writing to the Permanent Secretary.

A black lady in a suit and glasses points at a check list sign that reads numbers 1 2 3.

David said we must:

  • raise the re-opening of the Fund with all the main political parties in Northern Ireland
  • get re-opening included in the Programme for Government
A group of people sitting meeting round a table.

The Group agreed that David would invite the Permanent Secretary to a meeting to discuss the re-opening of the Fund.

David talked about a report about the United Nations Convention on the Rights of Persons with Disabilities.

The report mentions the ILF and that it needs to re-open.

David will give more information about the UN Convention at the next meeting.

The UN Convention and how it links to the Fund, will be discussed later in this meeting.

David will include the UN Convention in his letter to the Permanent Secretary.

Peter said that feedback from Scottish Government showed that the main things affecting the Fund reopening included:

  • ILF Scotland has a good reputation and people are confident that it can do the work
Young lady in green holds up a clipboard. She gives a thumbs up. A big green check tick mark is on the clipboard.
  • DPOs lobbying – this means DPOs trying to get a politician to support the campaign to reopen the Fund
  • demand for ILF Scotland to reopen as part of the Shadow Geneva Report

David suggested that Group members might link with members of other organisations they know.

5. Social Return on Investment valuation

Three people looking at a graph on a table.

Finbarr talked about the research so far.

The evaluation from 4 years ago will be updated to include the cost-of-living crisis and the COVID-19 pandemic.

Man in a blue jacket with his back to the camera looks at a screen with three people on it with different colour backgrounds

Finbarr has had 3 interviews with recipients and has 2 more planned in the coming weeks.

So far, people have had good experiences and have coped during the Covid pandemic.

Two females with speech bubbles. One in pink, the other in black. The one in black is writing something on her clipboard.

Linda asked the Stakeholder Group to get in touch with Finbarr if they want to be interviewed for the research.

A man in a green top and grey shoes gives a thumbs up. He stands beside a list with 5 green ticks on it.

Finbarr explained that themes coming through the research so far include:

  • how Covid affected people’s health
  • keeping PAs
  • being able to work flexibly using the furlough scheme
  • the good impact that ILF Scotland has

Finbarr said the report will be finished by the end of October 2023.

6. Policy Update - Suspensions

A pile of money and a calculator with a hand pressing the buttons. A red up arrow is on the right.

Linda said that funding may be suspended for different reasons and sometimes can be permanently closed.

The proposed change in policy would mean that an award would stay suspended but could be re-started if applicants are still eligible.

The policy also means that ILF Scotland can pay awards after 28 days if recipients in hospital need support from their PA or support provider, up to 6 months.

After 6 months each case will be looked at individually.

Both sponsor teams have agreed the proposals in the revised draft.

The draft is now out for consultation with the Stakeholder and Advisory Groups.

David said the policy should be clearer about who contacts ILF Scotland to advise of hospital stays.

Linda asked members to email any comments to her.

Caroline talked about self-employed PAs and private providers charging a ‘private’ rate to Recipients of £18 per hour.

Linda will talk about this with Robert White.

Niqi asked how strict ILF were at applying the Threshold Sum.

Linda said the rules had relaxed in the Covid pandemic but that assessors are now making sure that Trusts follow the rules.

Caroline talked about Direct Payments and the cost of daycare.

7. Supporting Award Managers / Third Party Payroll

A table of people. In front is a list with the numbers 1 to 5 and squiggles after each number.

Colin is waiting for information about this.

He will update the Group as soon as he can.

This will be on the agenda for the next meeting.

A man carries a large stack of papers and books. He looks up at the stack with a bit of worry.

Caroline commented on the amount of time, effort, and money she spends on admin tasks about the PAs that care for Lee.

This affects the amount of time she can spend with Lee.

8. UN Convention on the Rights of Persons with Disabilities

David introduced Jack Armstrong.

Jack is the policy and research officer for Danny Donnelly - MLA for East Antrim.

They are looking at proposals for a Private Members Bill for when there is a new Assembly in place.

They want the United Nations Convention on the Rights of Persons with Disabilities to be put into domestic law.

They are hoping that the new Minister will include this in the next Programme for Government.

David said:

  • this must be about much more than just accessibility for disabled people
  • it should also consider the right to independent living
A lady holds up a sign with 1 2 3 on it and lines after each number. She has her thumbs up and wears a dark blue purple top.

David raised issues about:

  • travel accessibility
  • complex assistance
  • additional funding needed for severely disabled people
Three people encompassed by a circle that's actually an arrow.

Niqi said there is a great loss to society if disabled people are not included.

Caroline said that:

  • the voices of disabled people and their loved ones are not being heard
Lady in a maroon tracksuit has her arm round a lady in a wheelchair
  • the Government does not recognise the contribution of unpaid carers and that social care would fold without this.

David reminded the Group that:

  • Article 19 of the Convention must be used to push for ILF re-opening
  • carers are getting older and are worried about the future care of their loved ones

Bryan asked how the bill was being promoted and if all political parties were supporting this submission.

Jack said this is part of an Alliance Manifesto and that:

  • they are working on what it will say
  • promotion will be important

They will use the group that Danny sits on and consultation to help with this.

Danny introduced himself and asked for feedback on what should be in his submission to the UN Convention on the Rights of Persons with Disabilities.

He gave the history of the Fund and noted that ILF reopening was not in the Manifesto.

David said that:

  • Article 19 is very important to the ILF
  • how important it is that our most severely disabled people can get out and about and be heard

Amanda spoke about how she relies on unpaid care because paid care just ‘gets her up’.

Caroline said:

  • there are 3 hundred and 60 thousand unpaid carers in Northern Ireland and they need time to themselves
Three people in white t-shirts with their thumbs up
  • ILF is empowering and gives disabled people and their families a quality of life
Man looks at his watch. Big red tick in front of him and a stopwatch behind him.

We must get the bill passed so that ILF is reopened and people get quick assessments.

David said this must happen in a way that protects disabled people’s rights.

Danny agreed that it is about being treated with dignity as equal citizens.

Niqi said it is about the right to be independent and have choice and control in your life.

We take that for granted but disabled people should have this too and it is so much cheaper to have people at home than in care.

Caroline said it is positive to have disabled people as part of the community.

Niqi said that all ILF funding is used to support disabled people.

9. Joint Stakeholder Meeting Update

Envelope with email written on it on a screen of a laptop

Members are disappointed the joint event in October had to be rescheduled.

A screen / ipad with a laughing lady holding an ipad on it with a yellow background. Other faces are along the top of the screen.

Linda said sorry and that:

  • Harvey had sent out a letter explaining why the event was postponed
  • she will set up a planning meeting soon

10. Review Visit Update

Liz said there are 2 assessors for Northern Ireland.

Sandra Sweeney will now be supporting in a management capacity.

A lady holds up a sign with 1 2 3 on it and lines after each number. She has her thumbs up and wears a dark blue purple top.

Linda spoke about:

  • all Trust areas are finding it difficult to get day care
  • getting information for care schedules
  • how difficult it is for recipients to keep PAs

Caroline said:

  • PAs need £15 an hour
  • it is difficult it is to get PAs trained and to keep them
  • Trusts will not train one PA but employers cannot wait for group training

11. PA training programme

Mervyn shared a presentation about free learning for PAs.

He advised about access to the app and where to find more information.

A pile of money and a person's hand pressing the buttons on a calculator.

Niqi asked:

  • if there was a cost to register with the Northern Ireland Social Care Council
  • if it would be possible to have a separate section for PAs

Mervyn said it costs £30 to register.

Mervyn said safe practice modules are being introduced next year for social care workers.

Mervyn said safe practice modules are being introduced next year for social care workers.

They must do these in the first 6 months of employment.

Envelope with email written on it on a screen of a laptop

Some PAs may be family members.

Lee will share the presentation and video with the Stakeholder Group.

12. Charter for Involvement

Linda said:

  • Emma is off sick and the meetings would happen when she comes back, hopefully in October
A black lady in a suit and glasses points at a check list sign that reads numbers 1 2 3.

We only need 1 or 2 meetings to:

  • look at what work has happened
  • decide the order that the work must be finished

Recipient feedback will be discussed at the meetings.

It was stopped because of Covid-19 and has not re-started.

There is a link between the Charter for Involvement and ILF Scotland’s Equalities statements, which need to be renewed in April 24.

13. Terms of Reference and Membership

David suggested that:

  • Amanda can be a member and also represent The Omnibus Partnership
  • we could invite Michael Lorimer to be an Affiliate Member

Michael is Chairperson of the Independent Monitoring Mechanism for Northern Ireland.

This is the organisation that checks how the United Nations Convention on the Rights of Persons with Disabilities will be followed here.

Three people in white t-shirts with their thumbs up

David suggested that the Stakeholder Group become a Disabled Person’s Organisation (DPO).

Everyone agreed to David’s suggestions.

Frances asked for all Group members to lobby other groups as well as their MLAs.

Peter wants to think more about the Group becoming a DPO.

4 people talking in a meeting at a table. Two screens are on the wall. One man in the screen has a pie chart behind him.

David asked that the Terms of Reference be checked at the next meeting.

We must look at the quorum and those members not attending.

A quorum is the smallest number of people who must be at a meeting for it to take place.

Grey faces of people with a question mark in the middle. A red line goes through the whole image. Represents who wasn't in attendance

Linda will draft a letter for David to tell members they will be removed from the group if they have not attended in the last year.

People will have a chance to respond.

Everyone agreed to this.

A table of people. In front is a list with the numbers 1 to 5 and squiggles after each number.

David asked members to think about changing the name to Advisory Group, like Scotland.

This will be on the agenda for the next meeting.

13. Any Other Business

Three people behind a desk with speech bubbles above their heads. The middle bubble reads 'Any Other Business?

Bryan said his organisation is having an event at the Stormont Hotel on 7 November.

All Stakeholder Group members and ILF Scotland staff are welcome to attend.

14. Next Meeting

Next meeting - Tuesday 5 December at the Mount Conference Centre where a Christmas lunch will be provided.

The meeting will also be on Zoom.

Copyright images © Photosymbols.

Prepared by Disability Equality Scotland

a pink rectangle with the disability equality Scotland logo in white, inside it - a white outline of a speech bubble with an equals sign inside it next to the words easy read made by Disability Equality Scotland. It is next to a blue rectangle with a white tick on it with the words made with photosymbols on it.

202402 - Northern Ireland Advisory Group Minutes - February 2024

Note of Meeting
Northern Ireland Stakeholder Group Meeting

Thursday 29 February 2024, 11am to 3pm
The Mount Conference Centre and via Zoom

Permanent Members Present

Affiliate Members Present

ILF Scotland Representatives in Attendance

Permanent Members Apologies

List of Actions:

1. Welcome, Introductions, Apologies & Housekeeping

David welcomed everyone to the meeting.

Lee advised of the fire exits.

2. Minutes from Previous Meetings

The Group approved the previous meeting’s minutes. ILF Scotland’s Communications Team will upload to the website.

Actions from previous meeting
None

3. Matters Arising

David referred to Item 8 and explained that Disabled People’s Organisations were returning to Geneva, Switzerland for the UK Government Session with the UN Committee on the Rights of Persons with Disabilities on Monday, 18 March 2024. He added that the NI Representatives were Michael Lorimer, who met with us at our last Meeting, Tony O’Reilly, who had been a speaker for us at our joint Gathering in Stormont in 2019, and two other disabled people, both wheelchair users. Robert asked whether it would be available to watch online or on TV. David replied that he would check and let him, and the other Members of the Group know.

David asked that Items 7 (Disabled People’s Organisation Proposal) 11 (PA Training Programme) 13 (Terms of Reference) and 14 (Membership) be carried forward to our next Meeting, to allow sufficient time to discuss especially arrangements around our Joint Gathering in Edinburgh Scotland. All Members agreed this.

4. Election of Chairperson and Vice Chairperson

Carried forward to next meeting.

5. Re-Opening of the 2015 Fund in Northern Ireland

Harvey advised the group of the latest update with the re-opening in Scotland and the work currently being completed to open on the 1 April 2024. He advised that six co-production events have taken place in person and online. The feedback from these events has been collated and a report is currently being produced for submission to the Minister. Harvey advised that ILF in Scotland is on track to re-open in April 2024.

Harvey noted that the Government in Northern Ireland has been formed and that the budget process is currently ongoing and will be confirmed shortly. Once the budget is complete, a submission will go to the Minister from the Sponsor Team to re-open the Fund in Northern Ireland, hopefully within the next 4 to 6 weeks. If approved, we would then undertake co-production events across Northern Ireland similar to the process followed in Scotland.

David advised the Group that he has sent a letter to the Minister inviting him to join us and speak at the Joint Stakeholder Event in Edinburgh at the end of March. David will share the response with the Group once received. David mentioned that there was a worry that the budget would only be sufficient to support one year of re-opening from the Government. Harvey advised that Colin Dunlop discussed this with him and is confident this should not affect the re-opening and budgets would be reviewed on a yearly basis.

6. Joint Stakeholder Event Update

Harvey advised the Stakeholder Group that a large amount of work has taken place with a set agenda agreed, and accommodation being arranged for guests. The final preparations are ongoing with individual members on travel and food requirements. The presentations are complete, and we are waiting for some final notes from both Ministers in preparation for the event. Harvey re-iterated that the event is not a re-opening launch but rather celebrating a life with purpose. Harvey ran through the agenda and discussed the event at Holyrood.

7. Review Visit Update

Harvey advised that the review visits have been slightly delayed across Scotland and Northern Ireland. The Assessor team are working to address this. PA recruitment and cost of living is still a challenge at review visits.

Harvey advised that ILF Scotland have taken on new staff for now and the future re-opening.

8. Policy Update Suspensions

Harvey advised that Policy 38 has now been signed off by both the Scottish and the NI Government and ILF Scotland has published it on its website.

Harvey then went on to talk about payment for managing awards. As this has implications across the Health and Social Care landscape, we (ILF Scotland) are unable to do this in isolation. The feedback from Government, is this is not on the agenda as the costs would be prohibitive at this time.

Caroline asked Harvey to confirm if we can be paid for attending meetings. Harvey replied that ILF can cover all reasonable costs including travel, food and additional caring costs but are unable to pay for attendance. The reason for this is it would impact across Government in every forum where lived experience is asked for (not just limited to Health and Social Care). From a Governmental perspective, this is not something that at present could be supported even for ILF Scotland in isolation. Harvey added that ILF Scotland will continue looking at any possibilities of doing this within its current structures and will report back as and when any progress is made.

9. Charter for Involvement

Carried forward to next meeting.

10. Any Other Business

None

11. Proposed Next Meeting and Arrangements

Tuesday 28 May 2024

202402 - Northern Ireland Stakeholder Group Minutes - May 2024 (Easy Read)

Independent Living Fund Scotland

Northern Ireland Stakeholder Group Meeting Minutes

28 May 2024

Easy Read

Who was at this meeting?

Permanent Members

Caroline Wheeler

David McDonald, Chairperson

Robert Dallas

Affiliate Members

Amanda Paul

From ILF Scotland

Harvey Tilley

Karen Burnett via Zoom

Lee House

Linda Scott Robert White via Zoom

Who could not come to the meeting?

Frances McHugh

Kieran McCarthy, Vice Chairperson

Niqi Rainey   Bryan Miles

List of Actions

David to book a room for an event at the Northern Ireland Assembly and Harvey to check how ILF Scotland can help.

Linda to ask the Department of Health for an increase to the Independent Living funding to match the new National Minimum Wage, the minimum pay per hour most workers in the UK should be paid by law.

Linda and Lee to arrange for the Northern Ireland and the Scotland Groups to meet together.

Harvey to look at whether the Group could become a Disabled Persons Organisation (DPO).

Linda to look at whether Stakeholder Group members could become a member of IMNI – this stands for the 'Independent Mechanism for Northern Ireland', which helps promote the rights of disabled people.   Lee to check that everyone still wants to be a member of the Group.

1. Welcome

David welcomed everyone to the meeting.

Lee said where the fire exits were.

2. Minutes of previous meeting

The Group agreed on what the minutes from the last meeting said.

The ILF Scotland Communications Team will add to their website.

2. Matters arising - what do we need to talk about

There was nothing else from the last meeting the Group needed to talk about..

3. Joint Stakeholder Event Review

Caroline said the Joint Event was great and Robert D said it was good to see everyone working together. Amanda enjoyed the trip and the meeting. David thanked ILF Scotland for organising the transport and somewhere to stay. He said that hiring wheelchair accessible transport in Northern Ireland was not as easy as it is in Scotland.  Harvey said that ILF Scotland were unhappy about the ramp for wheelchairs as it was dangerous and the layout of the venue for the event could have been much better.

The Scottish Government appreciated the feedback. Linda will write to Edinburgh City Council about the need for taxis that are easy for wheelchairs to get into.

Harvey said that there might be an event to celebrate the 10th anniversary of ILF. This could happen in July 2025 in Scotland. Linda said it might be an Independent Living Conference.

David suggested a meeting at the Northern Ireland Assembly this December.   

He said he was disappointed that none of the MLAs (Members of the Legislative Assesmbly) who are politicians in Northern Ireland could be at the Scotland event. David thinks that it should be a 2-hour event to talk about the Fund for the MLAs and that our friends and colleagues in Scotland would be welcome to share some of their experiences. Harvey said he would look at how ILF Scotland could help with Davids’s suggestion.

4. Re-Opening of the 2015 Fund in Northern Ireland

David wrote 2 weeks ago to Minister Robin Swann who is a member of the Northern Ireland Government. He asked him to look at the re-opening of the Independent Living Fund and said he was welcome to attend this meeting. He was not able to be here because of other work. David asked Colin Dunlop from the Department of Health in Northern Ireland to give the letter to the new Minister, Mike Nesbitt. Colin said that the re-opening of the Independent Living Fund is something the new Minister wants to look at but the cost is still an issue for the Department.

5. Review Visit Update

Robert told everyone that ILF Scotland still has about 80 visits to do so 2 Assessors are coming to help in August. The Assessors said that recipients are still finding it difficult to employ and  Personal Assistants. A Personal Assistant is paid to help people who need social care support to help them to live as independently as possible.

Some people’s needs do not seem to be met because of less money available from social work. The cost of living is also an issue. David asked Robert to tell the Trusts about the effect that reducing care packages will have on recipients’ mental and physical health. These reductions could mean the ILF funding would stop and that would leave recipients and their families worse off. Colin said he would ask about support for people who have had their trust packages reduced.

6. National Minimum Wage and Direct Payment Increases

The National Minimum Wage (NMW) went up from £10.42 to £11.44. Trusts gave the same increase to Personal Assistant rates and it has changed from £15.37 to £16.88 gross - this includes money for holiday pay, national insurance etc. The Trusts will pay this from 1 April 2024. Linda will ask the Department to agree the same level of increase for ILF recipients in Northern Ireland.

David asked ILF Scotland to work quickly on these actions. Amanda left the meeting at 1.52 pm.

7. Designation as Disabled People’s Organisation

David asked if the Stakeholder Group could be a Disabled People’s Organisation. Linda said that role of the Group is to work with ILF Scotland and not as a Disabled People’s Organisation. Harvey said he did not think this was needed but would ask the ILF legal team and tell the Group what they said.

David said that the IMNI (Independent Monitoring Mechanism for Northern Ireland) was set up by the United Nations to check and report on how the government is taking on board the rights of disabled people.

David said that the Stakeholder Group might want to send someone to attend the forum and feedback at the next Group meeting. They could ask questions about issues relevant to the Independent Living Fund. Linda said she would look at this before the next meeting. Harvey left the meeting 14.46.

8. Change of Name and Terms of Reference Review

Both these items were carried over to the next meeting.

9. Membership Review

David asked Lee to speak to HM to ask her if she still wishes to be a member and attend meetings.

Caroline, David, Robert and Linda agreed that ILF Scotland should look for some more new members for the Stakeholder Group. The Group talked about who should be in the Group and decided that the Group should be made up mostly by disabled ILF Scotland Recipients. It was agreed that the Northern Ireland Stakeholder Group should not include anyone representing an organisation. This will be talked about at the next meeting with the full Group.

10. Election of Chairperson and Vice Chairperson

David McDonald was voted in again as the Chairperson of the Group. The Vice Chairperson will be agreed at the next meeting as there was not enough people at the meeting to decide.

11. Charter for Involvement

Linda thanked everyone for attending the joint meeting held recently. Lee will send out minutes, but the main things the joint Group members though important were:

• Raising awareness of what Independent Living is or means

• Role of Award Manager

• Co-production Working Group for the re-opening of the Independent Living Fund

• Accessibility of ILF information

• ILF Scotland Board work

• Case studies of personal Assistants

David said ILF Scotland could work on ways to promote the role of a Personal Assistant. The Group agreed that employing more people and keeping them should be the priority of the charter work.

12. Subject and Planning of Next Joint Meeting

Linda and Lee will send out information on the date of the next meeting.

The Stakeholder Group raised the following to be discussed at the future meetings.

• Personal Assistant Training

• Award Management

13. Any Other Business

None

14. Next Meeting

Tuesday 3rd September 2024 11:30 with 12 o’clock start until 3:00.

Copyright images © Photosymbols.

Prepared by Disability Equality Scotland

a pink rectangle with the disability equality Scotland logo in white, inside it - a white outline of a speech bubble with an equals sign inside it next to the words easy read made by Disability Equality Scotland. It is next to a blue rectangle with a white tick on it with the words made with photosymbols on it.

202312 - Northern Ireland Advisory Group Minutes - December 2023

Note of Meeting

Tuesday 5 December, 11.30am – 3.30pm
The Mount Conference Centre / Zoom

Permanent Members Present

Affiliate Members Present

ILF Scotland Representatives in Attendance

Department of Health Representatives in Attendance

Other Attendees

Permanent Members Apologies

List of Actions:

1. Welcome, Introductions, Apologies and Housekeeping

David welcomed everyone to the meeting and advised those present of the guests scheduled to attend at various points during the meeting. Lee advised of the fire exits.

2. Minutes of Previous Meeting

The Group approved the previous meeting’s minutes. ILF Scotland’s Communications Team will upload to the website.

Actions points from previous meeting: 

3. Matters Arising

David reported very positive feedback from his PAs who are taking part in the staff training his PAs have received after the email modules sent out from Michaela.

4. Re-Opening of the 2015 Fund in Northern Ireland

Harvey advised the Group that the re-opening of the Fund to new Recipients in Scotland will commence in April 2024. The co-production Group is looking at the policy framework. Based on engagement to date, the preference is that there should be no charges (available income contributions).

Colin added that until the Assembly is fully functioning again, and Ministers are back in post and a budget has been determined, there can be no further update on the re-opening of the Fund to new Recipients in Northern Ireland.

Harvey suggested we send an information pack along with the invite to MLAs for the Joint Stakeholder Event 28 March 2024 at the Scottish Parliament.

Finbarr Fitzpatrick joined the meeting at 12.23pm

5. Social Return on Investment Valuation

Finbarr explained his findings to the Group, advising that his approach this time was more light touch and involved a smaller sample than the previous report and explaining that he had involved stakeholders to understand any changes required and the values that are important. Finbarr emphasised it was important to be transparent in the whole report.

The stakeholders referred to in the report are current ILF Recipients, Health & Social Care Trusts, Family and Primary Carers, Personal Assistants, NI Economy, and NI Civic Society.

The report found that every £1 invested through ILF, resulted in a social return of £13.00 and that the Independent Living Fund had been a critical enabler for health maintenance and resilience during the pandemic with additional funding made available to support Recipients to continue to remain independently at home.

Interviewees spoke of the empathy, understanding and flexibility in their interactions with ILF Scotland. There was a clear preventative effect demonstrated as Recipients reported being better able to overcome the challenges of the pandemic.

Bryan Myles joined the meeting at 12.35pm

6. Policy Update – Suspension & National Minimum Wage Uplift for 2023 to 2024

Linda advised the Group that the suspension policy is in final draft, and she will send this to David for comments and then to the Sponsor Teams to seek approval.

Colin and Linda have met to discuss the Direct Payment increased rate.

7. DPO

Carried forward to next meeting.

8. UN Convention on the Rights of Persons with Disabilities

Michael discussed Article 19 and the commitments that the UK Government has signed up to. Micheal attended a conference in Geneva in August 2023 as part of a Group of 17 from the UK, who gave a strong collective voice to the issues around the three Articles, and specifically on Article 19. The message that came across is that from 2017 there has been further regression on how effectively disabled people across the UK can access to social care. The Group highlighted the good work ILF Scotland is undertaking, and David highlighted the close collaborative formation and development of the Regional disabled People’s Health and Social Care Forum together with the Department of Health here in Northern Ireland. The recent uplifts in the rate of Direct Payments offer other examples of the close collaborative work happening here in Northern Ireland. Michael thanked David for his help in putting together the submission for the conference. There is a follow up meeting in Geneva scheduled for March, after which the results are to be published.

9. Joint Stakeholder Meeting Update

Harvey advised that ILF Scotland has booked the Scottish Parliament building in Scotland for 28 March 2024 and advised the Group of the agenda and plans for the event.

Members should confirm as soon as possible their attendance at the event and any travel and other requirements. Lee will send a reminder email with the requirements form and expenses form.

10. Review Visit Update

Carried forward to next meeting.

11. PA Training Programme

Carried forward to next meeting.

12. Charter for Involvement

Carried forward to next meeting.

13. Terms of Reference

Carried forward to next meeting.

14. Membership

Carried forward to next meeting.

15. Any Other Business

None

16. Proposed Next Meeting & Arrangements

David asked ILF Scotland to arrange another in person meeting late February prior to the joint meeting in Scotland at the end of March.

202309 - Northern Ireland Advisory Group Minutes - September 2023

Note of Meeting

Tuesday 19 September, 11.30am – 3.30pm
The Mount Conference Centre / Zoom

Permanent Members Present (in alphabetical order)

Affiliate Members Present (in alphabetical order)

ILF Scotland Representatives in Attendance (in alphabetical order)

Department of Health Representatives in Attendance (in alphabetical order)

Other Attendees (in alphabetical order)

Permanent Members Apologies (in alphabetical order)

List of Actions:

1. Welcome, Introductions, Apologies and Housekeeping

David welcomed everyone to the meeting and advised those present of the guests scheduled to attend at various points during the meeting. Lee advised of the fire exits.

2. Minutes of Previous Meeting

David asked that more detail of who was contributing and speaking at the meeting be added to the minutes.

The previous meeting’s minutes were approved and will be uploaded to the website. ILF Communications Team to action.

Actions points from previous meeting: 

3. Matters Arising

Niqi asked if the Charter for Involvement meetings were going ahead. Linda advised this is on the agenda for the meeting.

4. Re-Opening of the 2015 Fund in Northern Ireland

David congratulated Scotland on the announcement that their Fund would be re-opening in April 2024.

Colin advised the Stakeholder Group that the position of the Department of Health remained the same as previously discussed i.e. no Minister and no Executive. Colin has spoken with Jack Blaik and will be finalising a submission to provide information to the Department of Health on the steps taken by the Scottish Government to have the Fund re-opened and about the likelihood of some pressure to re-open in Northern Ireland.

Caroline mentioned that disabled people in Northern Ireland would not be receiving equity of funding compared to Scotland. Robert and Niqi supported this statement and agreed with David’s suggestion of writing to the Permanent Secretary. David advised the Group that they need to raise the re-opening of the Fund with all the main political parties in Northern Ireland and need to get re-opening included in the Programme for Government. The Group agreed that David would invite the Permanent Secretary to a meeting to discuss the re-opening of the Fund.

David explained that the recent Report on the Implementation of the United Nations Convention on the Rights of Persons with Disabilities, which he had had the opportunity to discuss with the UN Committees Rapporteurs, had included reference to the Independent Living Fund and the need for its re-opening here. Robert asked David for more information on the UN Convention. David agreed to provide it at the next meeting. Also, its relevance to the Fund would be discussed later in this meeting and David agreed to Include the UN Convention in his letter to the Permanent Secretary.

Peter advised the Group that feedback from Scottish Government indicated that the main influences on re-opening of the Fund included the reputation of ILF Scotland and confidence in its ability to deliver, and the strength of lobbying from DPOs in terms of increasing campaign work and demand for ILF Scotland to re-open as part of the Shadow Geneva Report. David suggested that Group members might liaise with members of other organisations they know.

Robert White, Sandra Sweeney and Elizabeth McGarrity joined the meeting at 12.20pm.

Finbarr Fitzpatrick joined the meeting at 12.25pm via Zoom.

Jack Armstrong joined the meeting in person at 12.25pm

5. Social Return on Investment Valuation

Finbarr gave a brief update on the research progress so far, explaining that the evaluation 4 years ago will be updated, taking into account the cost-of-living crisis and the COVID-19 pandemic. Finbarr has completed 3 interviews with Recipients and has a further 2 planned in the coming weeks. He reported that so far, the reported personal experiences have been uplifting with Recipients showing resilience through Covid. Linda asked the Stakeholder Group to get in touch with Finbarr if they would be willing to be interviewed to support the research.

Finbarr explained that themes coming through the research so far include:

Finbarr advised that the report will be completed by late October 2023.

6. Policy Update – Suspensions

Linda advised that currently, funding may be suspended for a variety of reasons and in certain circumstances, permanently closed. The proposed change in policy would mean that an award would generally remain in suspension and could be re-started providing applicants remained eligible.

For example, if a Recipient spent time in hospital and then a longer period in a residential home but returned to the community after a year or two, ILF Scotland would be able to re-start the award, providing the person remained eligible. In addition, the policy provides ILF Scotland with the discretion to continue to pay awards beyond 28 days where Recipients in hospital require support from their PA or support provider, up to a maximum of six months. Niqi asked Linda what would happen after 6 months. Linda advised that this will be looked at on a case-by-case basis.

Both sponsor teams have agreed the proposals in the revised draft, and it is now out for consultation with the Stakeholder and Advisory Groups.

David suggested that the policy should be clearer about who contacts ILF Scotland to advise of hospital stays and noted some additional comments. Linda asked for members to submit any comments to her.

Caroline raised the issue of self-employed PAs and private providers not working to a Direct Payment rate of £15 per hour but charging a ‘private’ rate to Recipients of £18 per hour. Linda will discuss with Robert White. Niqi asked how strict ILF were at applying the Threshold Sum and Linda said that it had relaxed somewhat during COVID-19, but assessors are ensuring this is adhered to by the Trusts. Caroline raised an issue about Direct Payments and the cost of daycare.

7. Supporting Award Managers / Third Party Payroll

Linda advised that Colin is still waiting on information and will update the Group as soon as he has this. This item to remain on the agenda for the next meeting.

Caroline commented on the time, effort, and money the admin impact has on her time with Lee. She estimated that in one week she could spend 20 hours or more on administrative tasks relating to the PAs that care for Lee.

Colin Dunlop left the meeting at 2pm

8. UN Convention on the Rights of Persons with Disabilities

David introduced Jack Armstrong. Jack explained he is the policy and research officer for Danny Donnelly and that they are looking at proposals for a Private Members Bill, getting prepared for when there is a new Assembly in place. They are particularly keen to ensure the incorporation of the United Nations Convention on the Rights of Persons with Disabilities into domestic law. They are hoping that the incoming Minister will pick this up and include in the next Programme for Government.

David stated that this submission must be about much more than just accessibility for disabled people and should also consider the right to independent living. David raised issues about travel accessibility, complex assistance and additional funding needed for severely disabled people. Niqi said there is a great loss to society in not doing this i.e. not facilitating inclusion and participation. Caroline commented that severely disabled peoples’ and their loved ones’ voices are not being heard and that the Government doesn’t recognise the contribution of unpaid carers and that social care would fold without this. David reminded the Group about article 19 of the Convention and the need to use this to push for ILF re-opening and highlighted the aging population of carers and their worries about their loved ones into the future. Robert emphasised that future proofing is important because carers worry about who will look after their loved ones when they are unable to.

Bryan asked how the bill was being promoted and if all political parties were supporting this submission and Jack commented that this is part of an Alliance Manifesto. Jack commented that they are currently focusing on the content, but promotion will be important, and they will build the case for the public through the group that Danny sits on and through formal consultation.

Danny Donnelly, MLA for East Antrim, joined the meeting at 3.16pm, introduced himself to the Stakeholder Group and asked for feedback on what should be incorporated in his submission to the UN Convention on the Rights of Persons with Disabilities.

David provided Danny with an update on the history of the Fund and noted that ILF re-opening wasn’t’ include in the Manifesto. He referenced re-opening in Scotland next year and Article 19s central relevance to the Independent Living Fund and how vital it is to enable our most severely disabled people to get out and about and be heard. Amanda spoke about how she relies on unpaid care because paid care just ‘gets her up’. Caroline noted there are 360 thousand unpaid carers in Northern Ireland and that unpaid carers needed time to themselves. She said that ILF is empowering and gives disabled people and their families a quality of life. Getting the bill passes and ILF re-opened is what is needed as well as quick assessments. David commented that the emphasis must be on disabled peoples’ rights. Danny agreed that it’s about dignity as equal citizens. Niqi said it’s about the right to be independent and have choice and control in their own lives – we take that for granted but disabled people should have this too and it is so much cheaper to have people at home than in care. Caroline noted the positive impact that having disabled people as part of the community has. Niqi made the point that all ILF’s funding is used directly on supporting disabled people.

9. Joint Stakeholder Meeting Update

Members commented on how disappointed they were that the joint event in October had to be rescheduled and that this had caused some stress and inconvenience. Linda apologised, referenced the letter Harvey had sent out explaining why it had to be postponed and confirmed that she will set up a planning meeting soon.

10. Review Visit Update

Liz advised the Group that there are currently two assessors for Northern Ireland. Sandra Sweeney will now be supporting in a management capacity. She spoke about the current challenges in all Trust areas relating to difficulties in the provision of day care, getting information for care schedules, and, for Recipients, the challenge of retaining PAs. Caroline raised the issue on the need for higher wages for PAs because they can work elsewhere for more money and less responsibility. She thinks the rate needs to be £15 per hour to sustain people in employment and raised how difficult it is to get PAs trained and then they can’t retain them – Trusts wont train one PA but it is not feasible for employers to wait on group training.

Finbarr Fitzpatrick left Zoom at 1pm

11. PA Training Programme

Mervyn Bothwell from the Northern Ireland Social Care Council (NISCC) joined the meeting in person at 1pm

Mervyn shared a presentation that focused on free learning for PAs and advised about access to the app and where more details can be found.

Niqi asked if there was a cost to register with the Northern Ireland Social Care Council and asked if it would be possible to have a separate section for PAs. Mervyn confirmed it costs £30 to register.

Caroline commented on the lack of basic training for PAs and that there was a need to provide a foundation of learning for them. Mervyn responded that safe practice modules are being introduced next year for social care workers and they would have to complete these within the first six months of employment. He realised, however, that, life is quite different in respect of PAs e.g. family members as PAs.

Lee to share the presentation and video with the Stakeholder Group.

Frances McHugh left the meeting at 1.20pm

Peter Scott and Harvey Tilley left the meeting at 1.33pm

12. Charter for Involvement

Linda advised the Group that Emma is currently off sick, and the meetings would be rescheduled when she returns, hopefully in October. Linda suggested only one or two meetings will be required, focusing on what has been achieved and prioritizing what is still to be completed. Part of the discussion will also focus on Recipient feedback, the mechanisms of which ILF Scotland is currently revising. It was stopped because of Covid-19 and hasn’t been re-started yet. There is also a clear link between the Charter and ILF Scotland’s Equalities statements, which need to be renewed in April 24.

13. Terms of Reference and Membership

David advised the Stakeholder Group that he would like to restructure membership. He suggested that Amanda, as well as being a member in her own right, would represent another Group she is the Chairperson of, The Omnibus Partnership, consisting of disabled people working to strengthen their rights, with many of them potentially eligible for a re-opened Fund.

He would also like to invite Michael Lorimer, Chairperson of the Independent Monitoring Mechanism for Northern Ireland, which is the body officially charged with keeping an eye on the implementation of the United Nations Convention on the Rights of Persons with Disabilities here, to join as an Affiliate Member.

David suggested that the Stakeholder Group become a DPO. Everyone agreed to these suggestions because of the potential for additional reach and Frances asked for all Group members to lobby other groups as well as their MLAs. Peter notes in the comments at the meeting that he wished to consider further the Group becoming a DPO.

David asked that the Terms of Reference be reviewed at the next meeting. There is a need to look at the quorum and those members not attending. Linda to draft a letter for David advising those members who have not attended for the last year that the Group intends to remove them from the list of members but give people an opportunity to respond. All agreed to this.

David asked members to give some consideration to changing the name to Advisory Group, like Scotland. To be included on the agenda for the next meeting.

Robert White and Sandra Sweeney re-joined meeting at 3.09pm

14. Any Other Business

Bryan informed the Group that his organisation is hosting an event at the Stormont Hotel on 7 November and all Stakeholder Group Members and ILF Scotland staff are welcome to attend.

15. Proposed Next Meeting & Arrangements

Next meeting - Tuesday 5 December at the Mount Conference Centre where a Christmas lunch will be provided. The meeting will also be held on Zoom for those unable to attend.

2022 - Northern Ireland Advisory Group Action Points (Easy Read)

Independent Living Fund Scotland

Northern Ireland Stakeholder Group

Action Points from September and December 2022 meetings

Easy Read

September 2022 meeting action points

A laptop with an email envelope on the screen alongside a pile of cash and a hand pressing a calculator.

Linda to add information into the external newsletter about employee contributions and national insurance.

December 2022 meeting action points

A man in a wheelchair talks to a lady who is kneeling down.

Colin and Linda to talk about raising the amount that Personal Assistants are paid per hour, by 12 per cent.

This should be done before April 2023 and backdated to 1 April 2022.

Backdated means the money should be paid from a date in the past.
This action has been done.

Lee to share weblinks from Michaela to the communication team about:

  • personal assistant support
  • personal assistant training

Copyright images © Photosymbols. Prepared by Disability Equality Scotland

202303 - Northern Ireland Advisory Group Minutes - March 2023 (Easy Read)

Independent Living Fund Scotland

Northern Ireland Stakeholder Group Meeting Minutes

7 March 2023

Easy Read

The meeting happened on Tuesday 7 March from 11.30am to 3pm.

The meeting happened in 2 ways:

  • on Zoom
  • at the Mount Conference Centre in Belfast

Permanent Members

David McDonald, Chair
Niqi Rainey
Frances McHugh (on Zoom)
Robert Dallas
Collette Jones
Caroline Wheeler
Kieran McCarthy (on Zoom, left meeting at 12:25)

Affiliate Members

Amanda Paul (left meeting at 13:30)
Bryan Myles

From ILF Scotland

Linda Scott
Lee House
Peter Scott
Harvey Tilley
Robert White (joined on Zoom at 1.30pm and left at 2.20pm)

Who could not come to the meeting?

Michaela Hollywood

List of Actions

Linda to share with Bryan the AI/Uplift records of the accounts that Lothian Council for Inclusive Living manage

An uplift is an increase in the level of pay.

Peter will talk as soon as possible with the Northern Ireland Government about the increase in Personal Assistant (PA) rates happening in April 2023

Linda will email the group with the main ways that money could be saved when the fund is re-opened

Lee will email:

  • details of training of PAs to the Stakeholder Group

Insurance could be invalid if PAs are not trained properly.

  • the link from the ILF Scotland website on Advanced Care Planning to the Group

Advance care planning means making decisions about the care you would want to get if you could not speak for yourself in the future.

1. Welcome

David welcomed everyone and checked everyone was okay with the meeting sound being recorded.

2. Minutes of previous meeting

Everyone agreed the Minutes from February 2022 were fine.
The Minutes will be put on the ILF website.

A pile of money and a calculator with a hand pressing the buttons. A red up arrow is on the right.

Actions from the last meeting:

Colin and Linda will talk about increasing the rate of PA pay by 12 per cent before April 2023 and backdating the increase to 1 April 2022.

This action has happened.

Lee will share weblinks from Michaela to the communication team on PA support and training

3. Matters arising - what do we need to talk about

4 people stand talking to each other. There are speech bubbles coming out their heads. A red line is through the talking.

There were no new things we needed to talk about.

4. Re-opening of the 2015 Fund in Northern Ireland

Harvey said that because there is no Northern Ireland Assembly in place, they do not know if the fund can re-open.
Colin will work on a new proposal to be sent to the Permanent Secretary in April 2024.

A nurse stands beside an older lady in a wheelchair being pushed by a younger man. They all stand in front of a building with a sign half seen showing it's an NHS hospital.

David suggested that people leaving hospital and returning home should be part of the new proposal.

Harvey agreed that this will be included.

Niqi suggested that it would be a good idea to include information comparing ILF Scotland recipients to non ILF Scotland recipients for how many people had to have a hospital stay, particularly for Covid.

A recipient is someone who gets ILF money.

Linda said we could give the number of recipients who have advised ILF Scotland of hospital stays but was not sure if they will be able to mention Covid or not.

ILF Scotland will look more at this.

5. The plan to open the fund again in Northern Ireland

Linda confirmed that all uplifts have happened to the new maximum of 43 pounds a week or less.

David thanked Peter, Harvey, Linda and everyone else at ILF Scotland and Mark and Colin at the Department of Health who have worked hard on this.

6. PA increase in wages

A pile of money and a calculator with a hand pressing the buttons. A red up arrow is on the right.

Linda asked the group if they agreed with the way to uplift PA rates by 12 per cent, as agreed between the Department of Health and ILF Scotland.

Any recipient who pays their PA 14 pounds and 75 pence an hour keeps this rate.

Any recipient’s PA who is paid below the national minimum wage will be increased to 9 pounds 50 pence an hour.

These increases will happen for most recipients by the beginning of April 2023.

The increases may take a bit longer if a recipient is having a review visit or their money has been suspended.

The Group accepted the proposals and thanked everyone involved at ILF Scotland and the NI Department of Health for making this possible.

It will make a big difference to hiring and keeping PAs and to all our lives.

Members asked that future increases happen in time for recipients and Award Managers to increase PA wages on 6 April.

Peter will talk to the Government about this as soon as possible.

7. Review Visits

Robert said that ILF Scotland are behind on review visits because:

  • it is complicated to hire and keep PAs
  • assessors are finding it difficult to have social workers at review visits

Urgent reviews will always happen first.

Robert will keep giving the Group information about this.

8. Stakeholder/Advisory Group meeting

Harvey said we must send a proposal to the Scottish Government before ILF Scotland can plan a joint event.

David will invite the Permanent Secretary of the NI Department of Health.

A working group will start in April or May with members from Scotland and Northern Ireland to plan the event for September or October.

9. Advanced Care Planning

Linda said that ILF Scotland has added information about advanced care planning to its website.

10. PA training programme

David asked that we talk about this at the next meeting so Michaela can be there.

11. Supporting Award Managers/Third Party payroll

Peter said the Department of Health are looking at this and Colin will then give an update to the Stakeholder Group.

12. Charter for Involvement and ILF Scotland Meetings

Emma will arrange a working group to decide what work is the most important.

Linda said that ILF Scotland are looking at what recipients said in feedback surveys and this will be linked into the Charter.

Linda said that working groups will be arranged to start in the first 3 months of 2024.

ILF Scotland will publish an updated action plan in April 2023.

13. Any other business

Three people behind a desk with speech bubbles above their heads. The middle bubble reads 'Any Other Business?

No one had anything to add.

14. Next meeting

Lee will check potential dates with The Mount and will send out ‘save the dates’ emails to Group members.

Copyright images © Photosymbols. Prepared by Disability Equality Scotland

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