ILF Scotland

202409 - Northern Ireland Stakeholder Group Minutes - September 2024 (Easy Read)

Type of document: Northern Irish Minutes of recipient/stakeholder groups

Front page of the NI Advisory Group Meeting Minutes Easy Read September 2024

Read the document

Published: September 18, 2024

Independent Living Fund Scotland

Northern Ireland Stakeholder Group Meeting Minutes

3 September 2024

People meeting at a table - someone taking minutes in the foreground
Man on a laptop computer taking part in an online Teams meeting.
Calendar icon reading 3 September 2024
A smiling woman holding a document with the title 'Easy Read' on the cover along with the DES logo.

What this document is about

People meeting at a table - someone taking minutes in the foreground

This is an Easy Read document.

It is a set of Minutes to say what happened at a meeting.

In this document the Independent Living Fund Scotland is ILF Scotland for short.

Calendar icon reading 3 September 2024

The meeting was at The Mount Conference Centre and on Zoom.

A watchface showing 11 o'clock with a red arrow pointing to a watchface showing 3 o'clock.

It was on 3 September from 11 in the morning to 3 in the afternoon.

Who was at the meeting?

A group of people meeting at a table.

David McDonald (Chairperson) on Zoom
Caroline Wheeler
Niqi Rainey
Robert Dallas

A group of people meeting at a table.

ILF Scotland Staff

Peter Scott
Harvey Tilley
Linda Scott
Lee House
Robert White on Zoom
Karen Burnett on Zoom

Who was not at the meeting?

A group of people meeting at a table with a red line through the image.

Frances McHugh
Collette Jones

1. Welcome and introductions

A group of people meeting around a table.

David welcomed everyone to the meeting.

2. Minutes from the last meeting

A hand giving the thumbs up next to a laptop computer with a www website link on it.

The minutes were checked and agreed.

ILF Scotland's Communications Team will put them on the website.

Actions from the last meeting

A group of people meeting at a table.
  • David will ask a Member of the Legislative Assembly (MLA) to sponsor an event about reopening the Fund – this has been done
  • Harvey will see how ILF Scotland can help – this is still happening
Hand holding cash notes with green up arrow
  • Linda will ask for a National Minimum Wage increase for Independent Living Funding – this has been done
Three people talking with empty speech bubbles above their heads
  • Linda and Lee will arrange a meeting – this has been done
Cartoon of a list with an idea lightbulb in front
  • Harvey will find out how the Group can become a Disabled Person’s Organisation (DPO) – this has been done
  • Linda will look at membership for IMNI Disability Forum – this has been done

IMNI is the Independent Mechanism in Northern Ireland (IMNI).

Email on a laptop computer screen with hands on the keyboard. The email is shown as an envelope.
  • Harvey will find out how the Group can become a Disabled Person’s Organisation (DPO) – this has been done
  • Linda will look at membership for IMNI Disability Forum – this has been done

IMNI is the Independent Mechanism in Northern Ireland (IMNI).

3. What do we need to talk about?

A woman with an image of money in notes in a thought bubble above her head. She looks anxious.

Caroline is worried about:

  • the delay in increasing the ILF hourly rate and how it affects Personal Assistants (PAs) on Universal Credit
  • some payments are made every 4 weeks and some are made every month
Cartoon Universal Credit leaflet. Money in coins and notes point to the leaflet.

Caroline asked for more information about Universal Credit.

Linda and Colin will ask an expert on Universal Credit to come to a meeting.

A man scratching his head in confusion. There are black question marks above his head.

Niqi asked if the Stakeholder Group could become a DPO.

Harvey said they have discussed this but have not got legal advice yet.

Linda said the Terms of Reference would need to be changed if this happened.

Terms of Reference explain the work of an organisation and how it will be done.

The word Rules with a green tick red cross below it.

Peter said the Group would need different rules to be a DPO and ILF Scotland would have to make changes first before this could happen.

Members agreed the Group will stay as it is for now.

Three people sitting at a table with coffee

Linda said our rules say the Group can send a representative to the Disability Forum of the Independent Monitoring Mechanism for Northern Ireland (IMMNI).

Members agreed to do this and David will look at how to make this happen.

4. Hourly rate increase

Woman pushing man in wheelchair. Above them is a hand holding a fan of cash money with a green arrow pointing up

Linda said information has been sent to the Government in Northern Ireland about how the hourly rate for PAs should go up to follow National Minimum Wage increases.

Colin said a decision should be made later this month.

Upset woman reading bill with fan of money above her head.

David said the increase should be done in April because doing it later in the year and backdating payments causes problems for PAs who get Universal Credit.

Peter will tell Colin about this.

5. Policy

Woman in green giving thumbs up. A hand holding a fan of cash money with a green up arrow sits to the side.

Linda said:

  • in Scotland the maximum award was changed to 3 hundred and 30 pounds a week
  • the main work in Scotland had been about re-opening the Fund and making sure that applications are being completed quickly

6. Re-opening the 2015 Fund review

Email on a laptop computer screen with hands on the keyboard. The email is shown as an envelope.

Colin and his team will send information this month to the new Minister, Mike Nesbitt, MLA about re-opening the Fund.

Deena sent 2 letters to the Minister about this and Colin will check for a reply.

7. Terms of reference

A thinking man. He is thinking of a green tick and a red cross in a thought bubble above his head.

Members are worried that this group is small and there may not be enough people to make decisions.

Silhouettes of five people and a guide dog with a green background.

Linda said the Group’s Terms of Reference need 5 Permanent Members to be present for a quorum.

A quorum is the smallest number of people who must be at a meeting for it to take place.

Three silhouettes of the heads of people with green ticks above each of their heads.

Peter said the ILF Board Quorum is 3.

Members agreed to change the number for a quorum to 3.

Linda will send out changed Terms of Reference so that members can agree to the changes by email.

8. Name of group

A group of people meeting at a table.

Linda said in Scotland the Recipient Advisory Group changed its name to the ILF Scotland Advisory Group.

This made it clear they were not giving advice to people who got ILF money.

David suggested NI Advisory Group.

NI is short for Northern Ireland.

Woman in green looking stressed confused and anxious.

Niqi was worried that someone joining the Group would feel they had to give advice and that the Group name could put people off being members.

Man in a blue top pointing to list with green ticks on the first two items.

David said:

  • it is wrong to call us stakeholders
  • we are only advising ILF Scotland and local Government representatives
  • the Advisory Group in Scotland had not found it difficult to use the name and more people became members
Email Envelope Icon on a laptop computer

The Members agreed to change the name to ILF NI Advisory Group.

Linda will send out this change with the Terms of Reference changes.

9. Membership

Three people talking with empty speech bubbles above their heads

Members agreed this had been talked about earlier.

10. Centre for Independent Living NI Proposal

Smiling man and woman back to back

Deena Nimick is Campaigns and Policy Manager for the Centre for Independent Living Northern Ireland (CILNI).

The Chief Executive Officer of CILNI is Bryan Myles.

A man in blue shakes hands with a smiling woman in red.

The Members thanked Bryan and Deena for their work with this Group.

Deena and Bryan cannot now be members of this Group.

David said we should find other ways to use Deena’s and Bryan’s experience, expertise and enthusiasm.

11. Election of Chairperson and Vice Chairperson

Email Envelope Icon on a laptop computer

Members agreed with Peter’s idea that when emails are sent to the Group we include information about the roles and responsibilities of Chairperson and Vice Chairperson.

12. Christmas lunch arrangements

Email on a laptop computer screen with hands on the keyboard. The email is shown as an envelope.

Lee will email Christmas lunch details soon.

13. Disabled people's Parliament

Woman in green with thumbs up with people meeting at a table behind her

David asked if Members want to attend the Disabled People’s Parliament.
Members are interested in attending as individuals or as members of the Group.

David will tell the Group what happens next and when the next meetings are.

13. Re-opening the 2015 Fund

Man is worried - holding his head in his hands. Calendar month icons sit above him

David is worried that it is taking a long time to get the Department of Health to reopen the Fund in NI.

Scotland reopened its Fund nearly 9 months ago.

People meeting at a table. Above them is the ILF logo alongside a pile of cash and notes.

David said we should:

  • invite the new Minister of Health, Mike Nesbitt MLA, to meet us to encourage him to reopen the Fund in NI
  • have people who get ILF money at the meeting
  • re-start the Working Group
  • get support from the Health Committee
A man has his hand up to ask a question at a meeting. A speech bubble shows a big red question mark.
  • organise an event at the Assembly about reopening the ILF and invite the new Minister of Health and other MLAs to join us at it
  • invite MLAs to ask the Minister of Health questions about reopening
Email Envelope Icon on a laptop computer

David has invited an MLA to sponsor the event at Stormont in December.

David said we should invite Jim Elder-Woodward and the Scotland Advisory Group to the event

A woman stands at the front of seated people. She's giving a talk.

Niqi said that someone who gets ILF Scotland money should make a video or come to the event to talk about the difference the money has made to them.

Linda said that restarting the Working Group should be discussed with Colin.

Members will do all these things.

14. Promoting PAs

Woman pushing man in wheelchair. Above them is a hand holding a fan of cash money with a green arrow pointing up

Caroline said PAs are Personal Care Assistants and we must recognise the difference between a carer and PA.

David said the most important work is the value of the work of PAs paid with ILF.

Emma will look at this.

A woman laughs as she looks at a yellow book. A man holds up his hand as if asking a question.

Linda said that in the ILF Scotland Advisory Group:

  • they have done a case study on JoanTurner
  • Chloe McKee is writing a blog with her PA
Man on a laptop computer taking part in an online Teams meeting.

Caroline will meet online with people in NI to talk about this.

Members agreed this should be talked about at the next Joint Stakeholder Meeting in October.

15. Any other business

Anything else we need to talk about?

An agenda with three bullet points sits on a green background.

Members will keep the re-opening of the Fund in NI on the agenda with more information about how many people have applied for money.

Linda will ask Peter and Harvey to do this.

Actions from today's meeting

A woman in a purple hijab pointing to a list with green ticks on it.
  1. Lee or Linda will write to Permanent Members who have not been at many group meetings to ask them to confirm that they do not want to be in the Group.
  2. David will check that Kieran has stopped being Vice Chairperson.
  3. Linda or Colin will ask an expert on Universal Credit to come to a meeting.
  4. David will check on IMMNI membership.
  5. Linda will email members with information for members to check and agree about:
    • the Terms of Reference
    • the Group name change and Election of Chairperson and Vice Chairperson, with their roles and responsibilities
  6. Lee will email out Christmas Lunch arrangements.

16. Next meeting and arrangements

A calendar icon reading 10 December 2024

The next meeting will be on Tuesday 10 December with Xmas Lunch.

A hand icon in a stop gesture.

This is the end of the Minutes.

An icon that read made with base six.
An icon of a blue circle that reads made with Canva images.
chevron-down Skip to content